Saturday, April 13, 2013

Ready....Set....WAIT!

So with the end of chemo comes the start of radiation, or so I thought.

I met with the radiation doctor (radiologist?) over spring break and set up the appointment for me to be "simulated". In this appointment, they basically do a whole scan and plan where the (insert Doctor Evil voice here) lasers  will be pointed at me. After they get their data, it would take about a week and then I could start radiation. I was glad to have a starting date and to start the process. We scheduled radiation to be at 3:45 every day so that I wouldn't miss any school. I went to school this week and told my principal the plan, told the athletic director I couldn't work track meets, and told the assistant principal that I couldn't do any more detentions.

Then on Tuesday of this week, my surgeon called and said she had come across a new genetic test she would like me to do. Evidently this genetic mutation (wouldn't it be helpful if I could remember the name) is very rare and she doesn't think I'll test positive for it. However, with this mutation, having radiation will actually increase the likelihood of other cancers. Um....yeah let's have this test done! I guess it's a test they run on people under 35 so I'm just in!

So radiation is now on hold and I had to go back to all the above people and change what I had just told them. Slightly frustrating, though I'm excited to have a little time off to get a little energy going into radiation. They said that radiation will make me tired, but not as tired as chemo did.

With this break, I think I'm going to try and start working out again. I haven't been to the gym since right before my diagnosis and I'm ready to go back. Hopefully if I get a little endurance before radiation starts I'll be able to keep it up during it.

On another note, I'm trying to figure out if my hair is starting to grow back. I know it's not going to happen overnight, but if I could tell there was a little change that would make me EXTREMELY excited!

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